Volume 10,Issue 9
Family Resilience Experiences in Adolescents with Inflammatory Bowel Disease: A Qualitative Study
Objective: To explore the experiences of family resilience among adolescents with Inflammatory Bowel Disease (IBD), in order to provide a foundation for the development of effective clinical nursing intervention programs. Methods: Twenty-two adolescents with IBD were recruited using purposive sampling. In-depth, semi-structured interviews were conducted between July and August 2025. Interview data were analyzed using Colaizzi’s seven-step method. Results: Four themes and ten subthemes were identified: (1) family stress and challenges brought by IBD, including changes in the family environment, imbalanced family communication, and pressure associated with acute symptoms; (2) family support, including a sense of security, empowerment for personal growth, and emotional connection; (3) support outside the family, including online connections and social support; and (4) growth through adversity, including reshaped family health values and strengthened family cohesion. Conclusion: Healthcare professionals should place great emphasis on the negative impacts of IBD and actively utilize various support systems to enhance patients’ positive emotional experiences, thereby helping patients and their families achieve effective adjustment and adaptation.
[1] Loftus E, 2021, The Increasing Burden of Inflammatory Bowel Disease. Medical Journal of Australia, 214(8): 361–362.
[2] Dou Z, Zheng H, Shi Y, et al., 2024, Analysis of Global Prevalence, DALY and Trends of Inflammatory Bowel Disease and Their Correlations with Sociodemographic Index: Data From 1990 to 2019. Autoimmunity Reviews, 23(11): 103655.
[3] Grover Z, De Nardi A, Lewindon P, 2017, Inflammatory Bowel Disease in Adolescents. Australian Family Physician, 46(8): 565–571.
[4] Vuijk S, Camman A, de Ridder L, 2024, Considerations in Paediatric and Adolescent Inflammatory Bowel Disease. Journal of Crohn’s and Colitis, 18(Supplement_2): ii31–ii45.
[5] Qiu D, Hu M, Yu Y, et al., 2019, Acceptability of Psychosocial Interventions for Dementia Caregivers: A Systematic Review. BMC Psychiatry, 19(1): 23.
[6] Kuang Y, Wang M, Yu N, et al., 2023, Family Resilience of Patients Requiring Long-Term Care: A Meta-Synthesis of Qualitative Studies. Journal of Clinical Nursing, 32(13–14): 4159–4175.
[7] Bramuzzo M, De Carlo C, Arrigo S, et al., 2020, Parental Psychological Factors and Quality of Life of Children with Inflammatory Bowel Disease. Journal of Pediatric Gastroenterology and Nutrition, 70(2): 211–217.
[8] Suwanwong C, Raksat D, 2025, Navigate Chronic Illness: Antecedents and Consequences of Family Resilience—A Systematic Review and Meta-Analysis. The Family Journal.
[9] Walsh F, 2003, Family Resilience: A Framework for Clinical Practice. Family Process, 42(1): 1–18.
[10] Tempchin J, Storch B, Reigada L, 2021, Systematic Review: Psychosocial Factors of Resilience in Young People with Inflammatory Bowel Disease. Journal of Psychosomatic Research, 148: 110558.
[11] Finklestein M, Pagorek-Eshel S, Laufer A, 2020, Adolescents’ Individual Resilience and Its Association with Security Threats, Anxiety and Family Resilience. Journal of Family Studies, 2020(2): 1–17.
[12] Xu L, He B, Sun Y, et al., 2023, Incidence of Inflammatory Bowel Disease in Urban China: A Nationwide Population-Based Study. Clinical Gastroenterology and Hepatology, 21(13): 3379–3386.
[13] Sawyer S, Azzopardi P, Wickremarathne D, et al., 2018, The Age of Adolescence. The Lancet Child & Adolescent Health, 2(3): 223–228.
[14] Sanders C, 2003, Application of Colaizzi’s Method: Interpretation of an Auditable Decision Trail by a Novice Researcher. Contemporary Nurse, 14(3): 292–302.
[15] Lincoln Y, Guba E, 1985, Naturalistic Inquiry. Beverly Hills, CA: Sage Publications: 289–331.
[16] Purc-Stephenson R, Blake K, 2025, Understanding Diagnostic Delays and Health Outcomes for Inflammatory Bowel Disease: A Mixed-Methods Study of Patients’ Perspectives. Quality of Life Research, 34(3): 823–832.
[17] Alpert J, 2026, Transforming Healthcare: The Frontier of Integrative Medicine. American Journal of Medicine, 139(4): 500.
[18] Ricci C, Lanzarotto F, Lanzini A, 2008, The Multidisciplinary Team for Management of Inflammatory Bowel Diseases. Digestive and Liver Disease, 40(Suppl 2): S285–S288.
[19] Gleave A, Shah A, Tahir U, et al., 2025, Using Diet to Treat Inflammatory Bowel Disease: A Systematic Review. Official Journal of the American College of Gastroenterology | ACG, 120(1): 83–97.
[20] Herzer M, Denson L, Baldassano R, et al., 2011, Patient and Parent Psychosocial Factors Associated with Health-Related Quality of Life in Pediatric Inflammatory Bowel Disease. Journal of Pediatric Gastroenterology and Nutrition, 52(3): 295–299.
[21] Chen X, Yang F, Pan Y, et al., 2025, Transitions in Patterns of Family Resilience and Their Associations with Parent-Child Interaction: A Longitudinal Study Using Latent Transition Analysis Among Families of Children with Chronic Illness. Journal of Psychosomatic Research, 190: 112054.
[22] Schuman S, Graef D, Janicke D, et al., 2013, An Exploration of Family Problem-Solving and Affective Involvement as Moderators Between Disease Severity and Depressive Symptoms in Adolescents with Inflammatory Bowel Disease. Journal of Clinical Psychology in Medical Settings, 20(4): 488–496.
[23] Østergaard B, Kolbrun-Svavarsdottir E, Brødsgaard A, et al., 2026, The Effectiveness of Family Health Conversations Delivered by Nurses: A Systematic Review. Journal of Clinical Nursing, 35(2): 539–564.
[24] Foster K, O’Brien L, Korhonen T, 2012, Developing Resilient Children and Families When Parents Have Mental Illness: A Family-Focused Approach. International Journal of Mental Health Nursing, 21(1): 3–11.
[25] Walsh F, 2016, A Family Developmental Framework: Challenges and Resilience Across the Life Cycle. In Sexton T, Lebow J, eds. Handbook of Family Therapy. 2nd ed. New York: Routledge: 30–47.
[26] Werner E, 2004, Journeys from Childhood to Midlife: Risk, Resilience, and Recovery. Pediatrics, 114(2): 492.
[27] Wu D, 2020, Construction of Family Resilience Process Model for Breast Cancer Patients: A Grounded Theory Study, thesis, Anhui Medical University.
[28] Fan Y, Kang F, He M, 2024, A Qualitative Study on Family Coping of Adolescents with Depression from the Perspective of Family Resilience. Journal of Nurses Training, 39(21): 2331–2337.
[29] Zhang W, Feng X, Zhang H, [year not provided], A Qualitative Study on the Experience of Family Resilience Among Young and Middle-Aged Stroke Patients. [Journal not provided], 37(4): 717–721.
